I decided that it worth it to stay a little longer on my vacation here in Barbados. I think it's the first time I've been really able to relax in quite a while. I even got to finish a whole book (that wasn't recorded) in between seeing a little of Barbados, a couple of trips to the beach and eating some wonderful food.
As is the case with most people with Fibromyalgia, I found the need to sleep quite a bit the days after I accompanied Linda to the beach. While being in the water was quite a heavenly experience, the sun does me in. Maybe it's the Lupus/auto-immune thing, but I found it hard not to keep falling asleep the next day despite meds to the contrary.
Sleeping for most of a day, even when it seems to be necessary often fills me with guilt. Guilt that I am missing out on part of my life and should be fighting it. It is a very big sign of depression, too so it's hard to know where one stops and the other starts and vice-versa. There is definitely a trip to see a doctor about having to adjust meds for this situation in my future!
But, I have enjoyed just being here and away from the world even though I have had some internet connection time. There is much less envy and resentment in the people here than a lot of places one goes for vacation. I have noticed that New York is set up very much to bombard you with advertising nonstop and showing you what other people have and what you should have, too if you want to be; happy, in, noticed, successful, etc. There is little in the way of how to just 'be'; enjoy the simple things, and how to be happy with what you have instead of needing things to make you happy.
I suppose there is a lot of judgment involved in the New York life. People stand outside of a club waiting to be picked to go in based on who they are, who they know or what they look like. I guess I'm a bit too old to waste my time waiting on line in front of a club to be judged as attractive or cool enough or being stylish enough. I don't choose to have someone have that kind of judgement over me and accept it. Hating house music or dance music loud enough to pierce ear drums is another factor that discourages me.
I have been reading " The Mozart Effect" a really remarkable effect about the effects of music and vibration on the human body and its potential to help and heal people. Granted there were bits in there that fell into the hokey category, but there was much more thought provoking and scientific proof than anything that made the eye brows raise.
Looking back to parts of my life, I realized that some of the happiest times were times when I was singing regularly. Sure, part of it is breathing, but sound vibration is a huge factor.
Everything vibrates. an atom is an is vibrating energy that gives it form and function. It's mostly empty space! I want to look into some of the workshops and clinics when I return to New York, as no one is more tired of having the sleepin' through life blues than I am!
I've been reading a lot more about Zen and getting a clearer understanding, but all is mere curiosity if I am not putting it into effect by meditating. This seems to be a bit of an issue with myself and another family member. One can talk about something 24 hours a day, but it means nothing if it is never put into action. Potential is lost if it is never acted upon. One lesson (among many) is to learn to talk less about things and do more. I wonder how I am going to motivate or challenge myself to do this effectively...
Showing posts with label Lupus. Show all posts
Showing posts with label Lupus. Show all posts
Sunday, February 13, 2011
Sunday, September 26, 2010
Trying to practice what is preached.
I've been going to church with my dad on Sundays. I'm not particularly a church goer though I have nothing against it in general. It's been a time I get to spend with my dad that is very relaxed as we go for a bite to eat at a diner afterwards. The hardest part of it is getting up to be there for 10:30. I work nights and with exhaustion from Lupus/Fibromyalgia it is a challenge since getting to work is an even bigger one.
People getting together to worship and honor the Maker is a fine idea. When they start getting bogged down with dogma and comparing themselves with others is when I start taking umbrage with it. self-righteous behavior is extremely distasteful with me since we all fall short of the glory which is God. If you start pointing out differences between yourself and others and looking down on them for it, you are no longer 'loving your neighbor as yourself' since you're basically being a judgmental ass instead. Doesn't the good book say to judge not least ye be judged? It might behoove a few church goers in this world to actually read the Bible as a whole book and specifically the words of Jesus before they start pointin' fingers and getting all puffed up about how they're better than another. If they actually read the words of Jesus he specifically speaks out against such behavior and I often have to remind myself of that when I'm being critical of others or shout at another driver to discover his 'fucking turn signals' on his car. I know I have a long way to go.
I've found the messages of Buddhism to have almost the identical messages of Christianity. In fact all the major religions have basically a similar message but with slightly different points of view and a few rules that are specific to themselves but not necessarily the word of God. When all these religions fight, they are fighting over how each perceives the same God. Allah and God are the same thing. It always strikes me as two fleas arguing over what a dog is.
The "Ten Grave Precepts' of Buddhism are as follows
1 Do not kill
2 Do not steal
3 Honor the body - don't misuse sexuality
4 Don't cloud the mind (for example don't walk around drunk or stoned all the time)
5 Do not lie
6 Don't speak ill of others faults or mistakes. Don't gossip
7 Don't elevate yourself and blame others
8 Give generously. Do not be withholding
9 Do not be Angry
10 Do not defile the three treasure: Buddha, Dharma, and the Sanga.
Basically it's very much like the Ten Commandments.
We are all alike more than we know. When we move to find what is alike with someone we will be surprised to see how much there is. Differences aren't as great as we think they are.
While I don't think I'll be joining my father's Church any time soon, but I will enjoy the time I get to spend with him there and after having a bite to eat.
People getting together to worship and honor the Maker is a fine idea. When they start getting bogged down with dogma and comparing themselves with others is when I start taking umbrage with it. self-righteous behavior is extremely distasteful with me since we all fall short of the glory which is God. If you start pointing out differences between yourself and others and looking down on them for it, you are no longer 'loving your neighbor as yourself' since you're basically being a judgmental ass instead. Doesn't the good book say to judge not least ye be judged? It might behoove a few church goers in this world to actually read the Bible as a whole book and specifically the words of Jesus before they start pointin' fingers and getting all puffed up about how they're better than another. If they actually read the words of Jesus he specifically speaks out against such behavior and I often have to remind myself of that when I'm being critical of others or shout at another driver to discover his 'fucking turn signals' on his car. I know I have a long way to go.
I've found the messages of Buddhism to have almost the identical messages of Christianity. In fact all the major religions have basically a similar message but with slightly different points of view and a few rules that are specific to themselves but not necessarily the word of God. When all these religions fight, they are fighting over how each perceives the same God. Allah and God are the same thing. It always strikes me as two fleas arguing over what a dog is.
The "Ten Grave Precepts' of Buddhism are as follows
1 Do not kill
2 Do not steal
3 Honor the body - don't misuse sexuality
4 Don't cloud the mind (for example don't walk around drunk or stoned all the time)
5 Do not lie
6 Don't speak ill of others faults or mistakes. Don't gossip
7 Don't elevate yourself and blame others
8 Give generously. Do not be withholding
9 Do not be Angry
10 Do not defile the three treasure: Buddha, Dharma, and the Sanga.
Basically it's very much like the Ten Commandments.
We are all alike more than we know. When we move to find what is alike with someone we will be surprised to see how much there is. Differences aren't as great as we think they are.
While I don't think I'll be joining my father's Church any time soon, but I will enjoy the time I get to spend with him there and after having a bite to eat.
Monday, March 22, 2010
The circle of life.
The older we get the more we see those we know and love grow old as well. Today, I attended the funeral of a dear friend whose father passed away. The open casket thing always weirds me out a little bit as I keep expecting them to move some little tiny bit and their lips are so tightly sewn together that they look as if they are trying hard not to say something. And, of course since I am the world's nosiest person, I want to know what that something is; the answer to life, the universe and everything? Which is 42 for all you Hitchhiker's Guide fans. What he would have liked to have said now that there are no consequences? A summation of the life he lead?
My friend was having a really hard time and did his best to keep his emotions under control, but you could see how intense the grief was for him. I wish there was more I could have done.
There was good turn out of mutual friends and so nice to see some of them I'd not seen in almost 2 years despite the fact a few live only 5-8 miles from me. Working odd hours and their having wives and kids and day jobs makes finding common free time near impossible. They all look the same, but more adult. Myself, I remain remarkably immature despite the shock of gray hair at the hairline of my forehead. It's started there and is slowly working towards the back. If I wear a hair band, it's like I've a black wig over the gray. Gotta find the time to dye the damned thing.
After the funeral, I ran some errands had a coffee with my buddy Jim and an early meal with the folks at a diner. Now I'm completely shot and think a nice cocktail and maybe a movie is a good way to end the day, but there's so much crap that gets left for the days off that when I sleep through the my 1st day off after the work week, I have to cram it all into the next day and there's not enough time to do it all AND try and have any sort of social life.
I used to be a very very social adrenaline junkie. I'd spend my weekends sailing (single handing even when I owned a boat) or scuba diving with the good folk at Captain Mike's Dive Shop in the Bronx, or playing with the 1979 Alfa Romeo Spider Veloce' I owned and restored a number of years back or just hanging with friends and going hiking, drinking, what have you. Then I did a wreck dive on the U.S.S San Diego and did not compensate for the steel tank when I put my weight belt on and over weighted myself so that trying to climb up the ladder in very rough seas did something that herniated two discs in my lower back and from then on not only give me lower back pain but pinched some nerves that send pain down the back of my legs (one or the other, sometimes both) that is like the pain of hitting your funny bone or the pain you feel when your leg falls asleep and there is a feeling that comes after the pins and needle part stops that feels like the muscles are constricting or cramping severely for a moment. However, the pain I get in the back of my legs, this constricting of the muscles and cramping feeling isn't quick. It goes on and on and no amount of stretching or Tylenol, Ibuprophen will stop it. It literally drives me mad, bringing me to tears or spending half the night up walking around trying to 'stretch out' this horrendous pain. I've always had a high tolerance to pain, but this one literally bring me to my knees. Then add Lupus and Fibromyalgia to the mix and I bet it would make Arnold Schwarzanegger whimper like a little girly man.
The Lupus started showing signs in blood tests many years ago, but I hadn't had any 'flair ups' of any significance. But shortly after 9/11 I got Epstein Barr from working 50 hours a week and going to school full-time which brought on severe exhaustion and Fibromyalgia started often leaving me looking like I was drunk I was so tired. Having unknowingly herniating my neck (one major herniation that has left a permanent muscles in my neck and shoulder) and two bulges were from the end of 2001 when I tried to go skiing without having a cocktail before hand. I know what you're thinking. You'd have broke your neck if you'd been drinking, but I learned a long time ago, that since skiing kind of scares me a little since I'm super bad at it and my skis were wrong for me, but I was too cheap to get new ones, I do better when I have a drink or two since I loosen up and my fear of being out of control minimizes and I do a lot better. I realize this isn't logical, but of the many times I've gone skiing I've always found it to be so. Therefore when I wiped out and whacked my head so hard on the ground despite having tucked my chin to my chest and tried to break my fall, it still slammed into the earth and I was on my back facing up the mountain! I must have flipped in the air somehow. So feeling like I'd been chewed up and spat out I went into the bar and had a few gin and tonics and went back out to do 10 more runs which were 100% better - faster, more controlled, easier and I felt that I wasn't leaving the mountain with it having beaten me.
When I got up the next day and couldn't move my neck left or right without serious pain, I know that mountain had one and I was never going to be a good skier. It wasn't until years later when I started feeling the effects of the Lupus and Fibromyalgia that I got MRIs and saw all the damage. They had asked me if I was ever in an accident, and I'd said no. I had always thought of an accident as a car accident and was defined by not being able to get up and walk away from it. Having gotten up and walked away from all the horseback riding crashes and skiing ones, I never thought of them as having an accident, just pulling a muscle here and there. I figured I played rough and occasionally I was going feel it, but this was something new, and after the lower back herniations from diving was when the Lupus began showing its what it was capable of: exhaustion and pain like I'd never known before and wouldn't wish on my worst enemy. Soon the diving stopped and then later after a year or so the hiking and the even the kayaking slowed down significantly. It was hard to get to work every day (the hellish commute didn't help) and I was just too tired and hurt too much to do very much. And in a year, everything in my life had changed and was turned upside down, and all the things I did to blow off steam, make me happy and gave me something to look forward to - defined me - was gone. Now after 5 years, I'm still not used to no longer being the me I used to be and I continue to try to find a way to find the girl I used to be. This is my adventure. It seems I am to learn how to take crap and use it as fertilizer instead of just being knee deep in stinking filth. It's going to be interesting to see exactly what I can do to give my life meaning and bring back the joy I used to feel in a new and different way. Here we go...
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